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March 31st is Congenital Diaphragmatic Hernia Awareness Day!
"Little Angels"
THANKS!
We want to thank the parents for these beautiful Montages. We know that by sharing our stories we help others.
What is Congenital Diaphragmatic Hernia?
A congenital diaphragmatic hernia (commonly known as CDH) is an opening in the diaphragm (The dome-shaped muscle that seperates the chest cavity from the abdomen.) The hole allows the abdominal organs to push into the chest cavity. CDH is a life-threatening birth defect because it limits the growth of the heart and lungs.
Facts about Congenital Diaphragmatic Hernia.
CDH occurs in every 1-2000 live births in the United States.
CDH accounts for 8% of all major congenital anomalies.
Approximately 1,800 babies are born each year with CDH.
Approximately 50% of all babies born with CDH die.
CDH happens just as often as Spina Bifida and Cystic Fibrosis yet many have never heard of CDH.
After having a baby with CDH the chances of their sibling diagnosed with CDH is 2%.
CDH accounts for 8% of all major congenital anomalies.
Approximately 1,800 babies are born each year with CDH.
Approximately 50% of all babies born with CDH die.
CDH happens just as often as Spina Bifida and Cystic Fibrosis yet many have never heard of CDH.
After having a baby with CDH the chances of their sibling diagnosed with CDH is 2%.
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BREATH OF HOPE YAHOO LISTSERV
BREATH OF HOPE'S CAFE PRESS STORE
CDH LINKS
- ~A Rainbow of Hope
- ~Breath of Hope
- ~Brigham & Womans - NICU TERMS
- ~Brown - Fetal Treatment Program - CDH
- ~Brown - Woman & Infant's Hospital of Rhode Island
- ~Cecilia Winn Propst
- ~Children's Hospital of Philadelphia - Fetal Diagnosis
- ~Congenital Diaphragmatic Hernia Tribute~by Carrie, Noah's Mommy
- ~Fetal Care Center of Cincinnati
- ~IBIS-Birth Defect - CDH
- ~Keeping Hope Strong - Rochester, NY
- ~Lucile Packard Children's Hospital at Stanford - CDH
- ~NEO Reviews - Cutting Edge Neonatology
- ~NORD - National Organization for Rare Disorders
- ~Now I Lay Me Down to Sleep
- ~Paradigm Health - Intensive Care Publications & White Papers
- ~Phoenix Children's Hospital
- ~Real Hope for CDH - Kays Kids
- ~Revatio - Great Way to Understand Pulmonary Hypertention
- ~Stem Cell News.com
- ~UCSF Mediacl Center
- ~UVA - Diaphragmatic Hernia
- ~UVA Pediatric Surgery
- ~Your Surgery - Best View for CDH - to understand residual issues...
FOR SPECIAL KIDS
SUPPORT LINKS
- • A Heartbreaking Choice
- • Baby Center Board - for those that choose to Birth Early
- • Band of Parents - Raising Funds for Neuroblastoma - A Rare Cancer
- • Be Not Afraid
- • Bereavement Publications
- • Caringbridge
- • Little Angels Online - Rememberance - Memorial
- • Living with Trisomy 13 - MUST READ BEFORE AMIO!
- • Medical Alert bracelets and MORE
- • National Downs Syndrome Society
- • Patient Avocate Organization
- • Trisomy 13 - Letter from Mom, Melissa
- • United Health Care Childrens Foundation
- • Waiting With Gabriel